Our EB community is putting their
needles in place to make EB Quilts!
This is done to spread awareness
and raise funds for a cure. One of our EB moms, Linnet, is stitching
the squares together and making them into beautiful quilts like the ones pictured
on this page.
What do we do with these quilts
once they are finished? We donate them to Lynn Anderson for the EBMRF,
the Epidermolysis Bullosa Medical Research Foundation. Lynn is involved in
several fundraisers throughout the year to raise money for a cure, and she will
start auctioning the first quilt this summer.
Family and friends of EB patient Garrett Spaulding made a quilt that brought in
$80,000 for EB research at the 2002 Force
for Good Gala and Auction in Salt Lake City, Utah.
If you have EB, if your child has
EB or if you lost a loved one to EB, I hope you can participate in this project.
Once the quilt is finished we will post pictures of it on this website.
Click on the pictures for a
much bigger pic to see each
individual square!!
If you would like to contribute,
here is what you will need:
1. Quilt Square Size 13X13, only
decorate or write inside the 10x10
2. Any Fabric
3. You can use any means to decorate/write. Embroidery, Cross-stitching,
Iron-on, Fabric Paint.. anything you can think of.
4. Info that every quilt square should have:
--Name
--Birth date (death)
--Form of EB
If you are interested in making
the quilt square let me know
so I can let you know the address on where to send it!
EB Info World fully supports EBAN's mission
